ellen made more strides today.
her greatest stride, perhaps, was that she slept through the night but when she woke up, she kept her mother and me in conversation through most of the morning. THEN, she decided that she wanted to go for a walk. she was able to take a few more bites of food today and has been drinking plenty of fluids.
speaking of fluids, thanks to the pleurx catheter, i was able to remove another liter from her abdomen. she seems to feel better, and more importantly, breathe better when the fluid is removed. now i can take fluid off as her stomach indicates.
dr. gollob was in and said that she will, most likely, need to stay through the weekend. he wants her to be able to move around on her own without fear of a tumble. he mentioned her blood counts were still a little low and that was also a deciding factor. her creatnine is holding steady around 1.9.
she is scheduled for a cat-scan on wednesday. barring any setbacks, she will have the test that will determine the rest of her treatment.
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21 comments:
Progress in the making! Way to go Ellen! It is nice to hear you went for a walk, ate, and spent the morning in conversation. It must feel so much better without the excess fluid build-up. Keep up the great work!
Love and Prayers,
Debbe
Great news, baby steps everyday and soon she will be off and running. Thanks Ryan again for the updates, look foward to hearing something new & good everyday. Give her a hug & kiss for me.
Take Care of you and her......Say Hi to Susie.
Love to you all,
Jo Ann & Tom
So glad to hear things are going a little easier this time around. We think of you always and continue to pray for more positives, and we know there are hundreds of other families doing the same. We hope knowing this gives you even more strength!
Love, Kris and Dave
Good to hear you were feeling well enought to eat and carry on a coversation - don't overdo!
I hope every day you feel beter and stronger. Thought and prayers are always with all of you.
Linda O
Hey girl!!! Sounds like you had a very full day. It is good to hear that you are doing a little of different things. Keep taking those little steps and don't rush and push too hard! I sent a package in the mail today for you, so hopefully you get it in a few days. And I have to tell you that I bought one of the hats for myself. I wonder if I can get away with wearing it to work.
Things have been pretty busy here, but we are settling some into the school routine! Next week all the swimming times start, so we will have another thing to get used to in the schedule-and they all swim at least 2 times a week. The kids are running a 1 mile run on Saturday at the Lake Y. Tristan's running club is competing and the other two wanted to register, so there we are.
I tried to post Monday, but was having problems with it--so this may or may not be a repeat. The boys ran a 1 mile race Monday called the Labor of Love. Marcus ran the whole mile in 11 minutes and 20 seconds, and he thought it was hilarious that a beagle was running behind him the whole time!
We had another parent night tonight. Two down, one to go! Having the kids at different buildings is getting interesting! The scheduling is all different, and I am not liking getting up so early with Tristan.
I have to make sure that the homework is done and everyone is getting close to being in bed. My kids are night owls, while many of their friends have been in bed for over an hour! Book time and lights out! I hope that sleep comes to you tonight too!
Love, energy, and prayers heading to you! Jen
Hi Ryan and Ellen, Thank you for sending the good news of progress made, although small, in many areas. Hoping and praying that tonight is also peaceful for you and that tomorrow brings more improvements still. Continuing to pray that the medication is working and the test next week will show this. You aren't missing anything around here but the same kind of North Carolina heat, so try to stay strong and continue to show the love you have for each other as you wait out these long days. Love, Aunt Connie and the fam
Thanks for the update, Ryan. It
was good to hear that Ellen had a
bit better day. A little here a
little there. Thoughts and prayers
are abundant here with everyone.
Hopefully tomorrow wil be a good
day. Love, prayers, positive thoughts and energy to you Ellen.
Love to all.
JoAnn G
Glad to hear that Ellen was able to get out of bed for a little walk. Moving around will help with the energy level. Also it was good news to hear that she was able to converse most of the morning...I just know that improvement is happening little by little. Never give up the positive thinking.... Prayers and positive energy being sent daily by all of us.We will continue to pray,pray pray!!!!
Love, Marcia
Up at 5:10 fr work and what a great TGIF message this is! Very positive and encouraging stuff. Sooo happy to hear this.
Ryan, I think there is a new career out there for you with all your on the job medical training. We are all proud of you and grateful for your presence in Ellen's life.
Have a good day, Ellen We love you.
Margie
Hi Ellen and Ryan,
So happy to hear about the positive little advancements. Keep hanging in there, both of you. You are truly a great example for all of us. Your love and courage are like no other!!!!!!
Love, Paul and Fredda
What awesome news! Ellen you are amazing! I am so happy to hear you are making such progress this week and I know you will continue to do so each day. Keep up the good work. We are praying for continued strength and good news next week!
Love,
Hilary
Tell the doctors to keep it up - they seem to be on to the right formula! Go Ellen, Go. Hugs from Jan K.
Yes! A walk and some food and lots of conversation. Sounds like Ellen is dealing well with this round of treatment. And that has to make Ryan, mom, dad, brother and all friends feel better. Keep smiling and know prayers are still being prayed with thankfulness at the beginning for improvements we read about. Thank you Ryan. This is above and beyond the call of duty for you to keep us so well infomred. I truly appreciate your consideration.
Hi...I'm so grateful to hear that Ellen is doing so well and that the test won't be delayed as long as you originally thought. I still think of Ellen as the doctor's miracle girl, and I pray so much for that.
You've all been through so much, and I admire you for your strength and what Ellen's bracelet says, "Faith, Hope, Love." Some day you will be able to pay back through An Artful Life - I just know it!!
Love to you both,
Aunt Susan
Hey El & Ryan ~
As I got ready for work this morning I looked at my powerful Ellen bracelet and really thought about the words on it.
Faith: Knowing God is going to deliver you out of this illness and that you are beating this disease!
Hope: In what is to come! So many amazing things are coming up in your life and I just can not wait to see them happen.
Love: All of the people that think and pray for both of you every day, sometimes every minute! God's unconditional love.
I am amazed by your strength and am so proud of both of you. I'm continually praying in Faith:-)
love always, Ashley
YAY!!!!!!
that is great news guys! my thoughts and prayers are with you as always.
love,
alexa
Keep it up, El!!!! HOLLAAAAA
Way to go, El! Im sure you had alot to say after days of not talking much! And Im even more sure Ryan and Suz were delighted to conversate with you!
Everyday is one step closer. Just remember that. You're amazing! More amazing everyday. Stay strong. It will all be a memory of the past soon.
Love you very much. Hope you are back to the loft soon!
Love Jaime
I truly hope each day Ellen gets a little bit stronger, lucid, and you all feel renewed to keep fighting the fight. Love, Sommer
Hi Ellen and Ryan-
What great news! I'm so glad that this round of treatment is going much better than the first one! Thats wonderful that you were able to get up and walk around and eat a bit! Keep up the great work!!!! We like to hear good things about you! Thinking of you often!
~Kelly Kase
So glad to hear that Ellen made a little progress today. Hope you all have a restful eveing. I just want you to know that it is 6:30 and I put my p.j.s on.. so I guess thats a sign that there really isnt anything to exciting going on. Make sure you reasure Ellen that all the excitment is on hold until she gets home and can participate. Thoughts and prayers are with you all. Love Aunt Nancy.
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