Tuesday, September 11, 2007

we are coming home

the tone of this post may seem very matter-of-fact. it is. we decided that everyone who has shown us the support that we need, and has followed us through every step of this journey, deserves to know what is happening. they deserve the care and respect that they have shown us.

ellen had an mri of her brain last night because the doctors had become suspicious of her inability to kick the nausea that has been so persistent. this morning, hillary, one of dr. gollob's p.a.'s, came in with the results.

the cancer has spread.

the mri revealed that she has at least 4 small lesions on various portions of her brain. soon thereafter, we met with a radiation oncologist that was able to better explain what had happened. when cancer metastasizes (enters the blood stream) it basically has free reign over the body. even in the face of intense chemotherapy, it was able to make its way back into her head.

later that afternoon we met with the lead radiation oncologist at dumc. he said that he was going to start a course of radiation that would last 10-14 days. the overall cure rate, however, went from nearly 5% to non-existent. this was taking precedence over the disease in the rest of her body but ellen was ready to do whatever it took. you would never expect anything less.

you would also not expect what came next.

dr. gollob visited later (unfortunately, while i was picking don and diane up at the airport). he told ellen, suzy and my mother, lola, that he was advising against the radiation. the treatment was clearly not doing what it was supposed to do and whatever little time the radiation provided would not outweigh the added discomfort it would cause. he was suggesting that she discontinue treatment all together.

we feel that we have made the correct decisions about her health care every step of the way. obviously, what is considered "modern medicine" is not the answer. whether it's her chemical makeup or some other reason, the chemotherapy has not had the desired effect.

so, we are going another direction.

almost immediately ellen rejected dr. gollob's diagnosis as the end of her options. she contacted a holistic doctor that she had seen prior to one of her other treatments. after talking with him our optimism is renewed. we are invigorated. he is very excited to see her and to get started again. he feels, quite confidently, that he can be of great help to her.

the details of this course of action will follow. right now, though, we are preparing to come home. i ask that everyone be patient as we adjust and settle in. ellen and i are beyond excited to see everyone but we do have certain things that require our attention first.

please make no mistake. this is not a negative outcome. we see it has the natural course of events that will lead her to full health through holistic healing.

we are more encouraged than ever.

48 comments:

hurricaneseason said...

Sending love love love love love love love.

-Elizabeth

Anonymous said...

Wow both of you have had quite a day. I talked with Angie earlier and just want you to know we love you both very very much and are behind you on whatever you all decide backing you up with support and prayer. Ellen I will call you in a couple days after you get settled in and maybe I can look at a time next month to fly home for a visit- I have always loved OH during the fall season:) Love you!!!!!!!!
Natalie Cressy

Anonymous said...

as always, ryan, thank you for the posts. you two are the bravest people i have ever known. stay strong, please have a safe trip home. i am anxious to hear what the holistic doctor has in mind. i am thinking of you two constantly, and hopefully will be seeing you in ohio soon.

much love,
amina

Anonymous said...

Well... like Natalie said, we are behind you in every decision you make.

There is so much love surrounding you all right now.

I can't find the words to express how I feel, but to say...

I don't have sisters... I have girlfriends. I will be there, you name the time and the place.

Love you,
Angie

Darbysmith said...

Every decision you make is the right one, and everyone is behind you 110%. Whatever you need we are here. Home is were the heart is and it will be part of that healing process too.

Anonymous said...

The faith of the size of a mustard seed can move a mountain. Welcome home! I know Nugent will be more exited than anyone to see you walk in the door. Then comes the rest of us. Everyone is behind you guys 100% and can't wait to see you. We will give you time to get settled in. We will wait for the word when we can see you. You have been missed!!! Safe journey home
Love you ! Debbe

Anonymous said...

We love you guys, have a safe flight home... and were praying every step of the way!!!
Love Kristin

Anonymous said...

Thank you for the post. My prayers are with all of you as you make the journey home. You have made a wise decision balancing all that you must to come to this conclusion. Keep your faith and trust yourselves. Home and communicty care and love of friends and neighbors will be healing.

I see a holitic doctor and the results have been amazing. Traditional medicine did not work and this works for me. I am anxious to hear the therapy they will recommend.

God Bless you.

Jo Ann said...

Hi Ellen & Ryan,

Ellen thanks for taking my call yesterday, it was great to hear your voice. Be safe in your travels home, & I will see you both real soon!!

Much love to you both,

Jo Ann & Tom

Unknown said...

Have a safe trip home. YOu are in my prayers everyday. Keep up the faith. Together you are very strong and can get through this.
Jacque

Anonymous said...

Ellen,
you still have the love and support of so many people. we are all behind you and will support you all the way. whatever you need, we are all here for you! i am anxious to see you when you get home.
love,
hilary

Suzanne Bort Gray said...

It will be so good for you to be home. The power of familiar surroundings will create an energy you've not expected. That, combined with holistic healing can only add a peacefulness to this ordeal. Our love and prayers continue as your journey brings you full circle. You are always in our thoughts.
xoas

Anonymous said...

Ell and Ryan,

Again thank you for the update. I know this is a very hard time for you and your families and so appreciate you keeping all of us informed.

Glad to hear that you will be going home. Continuing to think and pray for you and hope you have a safe trip home. I am sure you are excited to be in the comforts of home.

Kelly Dragoiu

Anonymous said...

You have been very strong and will continue to be. We are looking forward to your return to Ohio.
Jim Blake

Anonymous said...

Ryan,

Would it be possible to try to explain what "holistic healing" would entail??? I have a general idea of what it would be like but wanted to see if you could give any additional insight...

Kelly Dragoiu

Anonymous said...

God Bless you both for your positive attitudes and fighting spirits! You are both in our thoughts and prayers.

Louann Smith

Anonymous said...

Ellen, I'm on my way out the door so won't write much, but wanted you to know how many people are supporting your decision. I do want to tell you that there is a kineseologist (sp) there in the Raleigh/Durham area who is listed as being the best in the east. His name is Dr. Reuben DeHaan. His number is 704 730 9115. I don't know if this would interest you, but he has an unusual rate of success and healing. I know he would be the first person I would see with any challenge I would ever have. His website is www.hcmionline.com .
We are continuing to send love and prayer to you. God is able!
Love, coni

Anonymous said...

Ellen and Ryan,
Home Sweet Home will lift everyone's spirits. You kids are amazing. I think your plan of action sounds just right. Hey, DR, get that yard ready and bring out the fireworks in celebration. Sending love and prayers to all of you....Sharon

Kelly said...

Ellen, Ryan and family,

Have a safe trip back to Ohio. You are all in our thoughts and prayers. Not a day goes by without thinking of you and how you are doing. You are all truly an inspiration to everyone who knows you.

Love always,

The Kase Girls

Anonymous said...

As i have been following your experiences through this blog, I have been amazed by your strength and courage and I know this will carry on through your holistic treatment. Never underestimated the power of love and positive energy...both of which I am sending your way!
-Shannon

Anonymous said...

Sending hope and prayers your way!

Anonymous said...

Bless 2 of the strongest people I've ever known. This sounds like a great plan. It will be wonderful for you to be back home and nearer to everyone who loves you. Positive thoughts, prayers, and tons of love to both of you.
Rich, Holly, Saw & Scarlett

Anonymous said...

MUCH love as always. Anxious to see you both tomorrow. Love Jaime

Anonymous said...

Have a safe trip back to Ohio. I will be thinking about you. I'll call you in a week or so once you have had a chance to settle in.

Love,
Monica

Anonymous said...

God Bless you both. Our arms are around you. Come home to a loving, caring community.

JanK.

Anonymous said...

Stay strong, my thoughts and prayers are with you all. Have a safe trip back to Ohio. Love you Aunt Nancy

Anonymous said...

Thanks, Ryan for the update. I pray for continued courage and strentgh as you face this next step towards Ellen's recovery. May God Bless and Keep you safe. Love and prayers are with you. Anna Hillhouse

Anonymous said...

Ellen and Ryan,

Thanks Ryan for the update. I am sure it was a very rough day, but stay positive! You two are so strong and brave. I know things are going to work out. Please have a safe trip home.

Praying and thinking of you always.

Love,
Amy and Mike

Anonymous said...

Dear Ellen and Ryan, So very sorry that you have had to endure this terrible report from the doctor. Your strenth as you try to make sense of this turn of events is a lesson for all of us. I am praying that the doctors and nurses keep up their excellent care as they help you make the trasition back to Ohio. Know that your parents and Christy are in our prayers as you hold onto each other in these next few days. Love Aunt Connie, Uncle Chuck, Heath, and Ross

Anonymous said...

ellen, the last time i saw you, the thing you were most excited about was the holistic treatment you had undergone. you were so passionate about the things you were learning through the doctor. i am very excited that you are taking this holistic position and running with it. This may very well be your best decision yet.

my love and prayers to both of you

alexa

Jen Sedlak said...

Ellen and Ryan,
I am here if you need me. Let me know of anything I can do. You are always in my thoughts. Love and prayers coming your way!
Jen

Anonymous said...

Lots of love and prayers to you and
now on to your next chapter. I have so much faith for you,Ellen.
Each day more new people ask about
the braclet and you, thus, more
prayers and positive wishes for you. Thanks for the update Ryan. As
usual, who could say it better. Have a safe trip home and can't wait to see you guys after you
settle in of course. Lots of love
and prayers to you guys. Love, JoAnn G

Anonymous said...

Have a safe flight home! All of us here in Ohio are praying for you both and thinking of you every day!!! Sending our thoughts and prays!!!!

Candi Davis

Anonymous said...

Sending you our love. Stay strong Deitemyers (sp?) & Grays.

Can't wait for positive news from the holistic DR!

Love, Nate, Sommer, & Bella

Anonymous said...

"May the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit"
Romans 15:13

I pray that God will work thru your holistic doctor and reveal the curing treatment you need for a complete recovery. Believe, hope, pray and rely on Him to give you strength throughout your battle.
~Laura Milano

Anonymous said...

Ellen & Ryan,

You continue to amaze me with your strength and determination. This will only bring you a positive outcome. We hope you have a safe trip home and we are praying for you.

Love,
Gina, Jared and Vincenzo

Anonymous said...

Dear Ellen & Ryan,

You're in all of our prayers for a safe trip home. It's true, there's no place like home.

May you continue to have the willpower and strength to fight this and find help through the holistic doctor.

Love to you both,
Uncle Ed and Aunt Susan

Anonymous said...

Ellen and Ryan,
Have a safe trip back to Ohio. I am thinking about you as always. You both are so strong and I truely admire that. When things get settled and you need some company (even for an hour) let me know and I will come visit. Take care.
Love,
Laura French

Anonymous said...

My thoughts and prayers are always with you. Each day is a gift for all of us to cherish, how we sometimes take things for granted. Keep the positive attitude flowing and know everyone is sending strength your way. Linda O

Anonymous said...

Ellen & Ryan,

Have a safe trip home and we are thinking about you and your families continually. If there is anything at all we can do please let us know. Your strength and courage continues to amaze me. I know God will see you through this.

Love, Dave, Krickett & Nathan

Anonymous said...

Just a note to encourage the good fight and to let you know prayers are with each one of you. May you find comfort from your many supporters along the way. Your community welcomes you home and I can safely say you could ask anybody for anything and they will be at your beckon call. May God surround you with His love.
D. Mishler

Elly Chain said...

Ryan and Ellen - You have shown so many people such strength and a positive outlook. We continue to pray for your healing and the next step you are taking. So glad to hear you'll be in Ohio. Have a safe journey and know that we send love, prayers, and positive thoughts every minute of the day. Continue to have strength for each other and your families. Love, Elly

Anonymous said...

Dear Ryan and Ellen,

Being home and surrounded by friends and family will be great medicine in itself. We continue to keep you in our thoughts and prayers. We will look forward to the updates, but know that everyone wants you to take all the time you need to settle in and get started on your new journey.
God bless you all. Your strength and love continue to amaze!!!!
Love, Paul and Fredda

Anonymous said...

You are coming home!!!! Hooray!
Nug will be so pleased- along with all of us here who want to shower you with hugs and kisses.

I am so glad you have made the decision to pursue holistic treatment. Holistic medicine has been practiced and refined for thousands of years- and practice makes perfect right?

Traditional medicine has its limitations, and I respect that your docs recommended discontinuing current treatment. Their protocol was experimental and they recognize it has its limitations.

Besides- we all know Ellen is special. She needs treatment as unique and wonderful as she is. See if you can find a practitioner who prescribes milkshakes and donatos thin crust- and Ellen will be feeling better in no time!

Take your time getting settled, we are all anxious to see our girl, but i totally respect your time alone too! No pressure!

xoxo,
brunner

Anonymous said...

Remember God is working, he knows that you need a different type of treatment and to be close to your friends and family. Stay positive!!!! We know your STRONG!!!!!!!!! Love you Aunt Nancy

Anonymous said...

Ellen and Ryan,
I am so glad that you are returning to Ohio and to all of your friends and loved ones who care so deeply for you both! Holistic medicine is a wonderful alternative and I have a good feeling about the positive outcomes that are still possible.
You still have the positive outlook and the desire for healing and I just know that good things are in store for you both. Keep believing in the power of prayer and never, never, give up!!!
See you soon when you're ready for a visit....I can just imagine the "line up" at the back door!!!!!
Love and prayers, Marcia

Anonymous said...

Thank you Ryan for all the updates. Have a safe trip home and stay positive. I will be waiting to hear what the holistic doctor has to say and what he is going to do. Thinking of you.
Jennifer M

Anonymous said...

Ellen and Ryan;Sending our love and prayers for strenght and peace.Glad you are coming home.Have lots of faith in your new approach because the success stories are amazing.Safe travels and God Bless to you and your families.

joe k